Gideon day 10 (off the ecmo spot)
11.30u
We are still at the hospital as of this morning because we have to get used to Gideon's new schedule again. Since yesterday, he gets more frequent and more frequent feedings, but with that his nursing moments change too. We were just getting used to a daily schedule and now we have to plan everything all over again. But we are willing to make up for it. Of course, we want to be at feeding moments as much as possible so we can give them ourselves.
Gideon seems to be a bit bothered by the CPAP, which is not strange as it is like a big snorkel on his nose. This doesn't stop him from turning his head so he regularly gets stuck. Hopefully he will switch to the low flow as soon as possible so that he will have more freedom of movement and less awkwardness on his head.
But other than that, he has been doing very well. He had a good night and this morning (in front of us) he pooped his nappy for the first time. Sounds crazy, but we were almost cheering. Now it seems all the meconium (which can cause constipation) is finally out of his little body. This in turn also helps the feed flow better.
He is starting to look better and better and (for us) is also becoming more baby with a little less tubing.
22.45u
I spent an hour and a half with Gideon tonight. What a special moment that was. That little loofie on my chest, being able to watch him all quiet while he slept and cuddling him gently. I could get used to that 🙂
He was also on low flow again for a while, but he still has to work hard to get enough oxygen in. We are curious to see how quickly he will master that.
Gideon is now taking 8 x 15ml feedings and almost nothing is coming back. So we wouldn't be surprised if he might go to 8 x 20ml tomorrow. And he is starting to regain some weight. His birth weight was 3400g and he weighed around 3200g just before he started feeding (2 days ago). Yesterday he now weighed 3300g so he will be back to birth weight soon. You can tell from everything that the feeding is doing him good. Healthy colour, some thicker legs again and most importantly better liver and bowel function.
And last but not least, he moved to a new place. The same ward (ICU) but no longer in an "ECMO spot". Now he lies among about 10 other kids which is a lot cozier, but also a bit busier with more beeps and alarms. But a step forward!
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Messages 1 up to and including 22 out of a total of 22
Hanneke from amersfoort
Sunday, 02-12-12 13:16
How wonderful that Gideon is doing so well! So cool to read that he is taking steps forward every time. Enjoy the three of you together.
Paula Brewer
Sunday, 02-12-12 12:41
Really cool!
My heart is soooooo happy....
xxx
Joke and Ton from Leende
Sat, 01-12-12 23:19
How nice that you, Nathanael, were also able to pouch with Gideon for a while. Special! And now away from the ECMO and slowly on your way home...! Sleep well and lots of love
Inge
Sat, 01-12-12 23:05
Thank you so much for always taking the trouble to write a note! Lots of love and goodnight!
Marijke from Leusden
Sat, 01-12-12 22:40
This was a special day........super in prayer and thoughts with you...
Love from me...
Wilfred and Christine
Sat, 01-12-12 22:24
Fantastic! How nice that t is going so well! Well poopy nappies are very nice.... BLESS!
Arno&Eunice
Sat, 01-12-12 21:03
Grateful for your poop moment! ;-) Lovely...
Martine Voogd from Amersfoort
Sat, 01-12-12 20:56
What a piece is that Gideon say!!! what super beautiful moments. how thankful we are for every victory. here at the table we were even heartily thanked for Gideon's poop. for this time we like to make an exception for "dirty" words at the table:) Good and faithful is our God!!!
Paula Brewer
Sat, 01-12-12 18:05
Special! Special! Special!
And what beautiful eyes Gideon has. Wonderful photos with Marieke together!
Love
judith and martin blommert from berghem
Sat, 01-12-12 17:16
Your stories are so recognisable! We feel the same way! Also what you write about the poopy nappy ;-) is Gideon already on the ward or not yet? We are now one floor up and it's going well, only she spits up regularly. We hope you can go upstairs soon or closer to home!
Corry Dercksen from Naarden
Sat, 01-12-12 17:09
How incredibly nice that Gideon is doing so well, very nice to read I am sooooo happy for you.
What an incredibly beautiful little poem you have created. it says it all. beautiful.
enjoy your beautiful son. big kiss all three.
peter and geriette van diermen
Sat, 01-12-12 16:46
What great news. We are so happy for you and your baby. Have a great time.
Yvonne Nijs from Almere
saturday, 01-12-12 15:38
How nice to read these positive posts every day. And every day the chances get bigger and bigger that you may enjoy poopy nappies and changes of rhythm for a very long time to come!!!
Great!
Love, Yvonne
Arianne
Sat, 01-12-12 14:16
I would almost say 'get used to it' ;-) I think that's all babyhood, that as soon as you think, we have a rhythm, the rhythm is different again ;-).
How incredibly nice to hear so much good news! Super that Gideon is doing so well, and that you keep us informed so faithfully. God is good! And you are great parents. Enjoy! X
Harry & Marcelle
Sat, 01-12-12 13:51
How nice to read all these positive stories every day. It also makes us happy and we look forward to the day when you walk with Gideon in the street and we can take a look in the car to see how he has grown.
We keep our fingers crossed for all of you, you are very much to be congratulated.
Elza&Evert and Eliza van de Kamp from Scherpenzeel(GLD)
saturday, 01-12-12 13:39
Dear Marieke&Nathanel and Gideon,
What good and fine news all.
We are so thankful for you that your little,brave,streaky guy is doing so well all around.
Enjoy the beautiful moments together with Gideon.
sweet greeting from us
Mattanja from Harderwijk
Sat, 01-12-12 13:24
I was actually wondering if his lungs are now as mature as little kids without his condition or are his lungs a bit smaller compared to them?
Bart and Elvera
Sat, 01-12-12 12:44
Wow wow, no words for it! Awesome!
Enjoy your little man! A son to be proud of!
God bless you!
Love, Bart and Elvera
B&E out temporarily from Curacao
Sat, 01-12-12 12:27
Wow, wow, wow!!! No words for this amazing progress.
We are grateful!
Inge&KJ,A,J,C
Saturday, 01-12-12 12:00
We all do want to stand here together in a grand mountain landscape and cheer and cheer and cheer and cheer and that the echo echoes endlessly. Then it adds a little to the overwhelmingly happy feeling we have for you!
Fam . de Bar
Sat, 01-12-12 11:44
Very touching and beautiful photos of the pouch, what a wonderful feeling this must be for you Marieke, but also for you Nathanael to see your wife and child like that. and it's not strange that you are cheering for these little things, they are such milestones and all equally special. Have a nice day together again.
Love from us
Joke and Ton from Leende
Sat, 01-12-12 11:41
How nice that things are going soooooo well! Better and better every day! Enjoy!