Gideon day 12
11.20u
We slept well. And Gideon had a reasonably restful night. After 8 hours on the low flow, they put him back on the CPAP to give him a bit more support when breathing. He still has to work pretty hard to keep up with everything and breathes a lot. His heart rate is also quite high. This could all have to do with kicking off the morphine, but at the moment we also don't know exactly how much lung capacity he has to work with.
Just when I had him on my lap for a moment and he had just had his feed, he threw up and was all upset again. Partly because of this, they cancelled this afternoon's examination for now. To give him a bit more rest.
We are still at the hospital now and have an appointment with our contact doctor in a moment.
All in all, it's taking it a bit easier with Gideon. At least until he is completely off the morphine.
22.20u
Thankfully, Gideon is back to his old self. Nice and quiet and when he needs to cry, he is easy to comfort. What a difference from yesterday and this morning. Too bad he's on medication, but nice that it's better for him at the moment, and really improving. Now they are going to reduce the morphine more slowly to prevent him from reacting so violently again.
Marieke did get to baby-sit with him for a bit tonight and you just sense that Gideon belongs there. With mummy. His heartbeat and breathing become a lot calmer and his oxygen is fine.
This morning, when Gideon was still restless, we had deliberately put the camera on "grey" for a while. So that when we were in the RM house we didn't worry about looking at the cam to see if everything was going well. We realise that we have to be careful not to let gauges, values and other monitors determine how we feel. That's not healthy... Gideon is still doing well, and although we still have a way to go and it can still be quite tough, there is a hopeful future.
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Messages 1 up to and including 22 out of a total of 22
Truus Westra from Bunschoten
Tuesday, 04-12-12 20:17
You are jugglers we continue to pray for you and little Gideon. And we trust in our dear heavenly Father who will take care of you. Lots of love Truus
Hester van Kooten from Amersfoort
Tuesday, 04-12-12 10:38
How nice to be able to read your posts to sympathise and pray. Lovely that Gideon is progressing so well and that you can enjoy him. At the same time, he is still so vulnerable and small. I can so imagine when he is restless you get restless too. How clever and admirable that you hold on to the hopeful promise for Gideon. I wish you peace and quiet, all three of you. And that you can take him home with you in a little while. What a great celebration that will be. We wish you this prospect so much!
Love, van Kooten family
Paula Brewer
Tuesday, 04-12-12 10:03
Nice to hear that!
I have full faith in God!
xxx
Eunice
Tuesday, 04-12-12 09:47
By the Father on the lap that's where I belong You lift me up etc. This song came in after reading your blog.
You crawl on the Father's lap, Gideon with you and so a beautiful family with Papa, secured under His cover. X
Carla van den Broek
Tuesday, 04-12-12 08:37
How clever you all are doing...so full of courage and hope ! Do you know how much strength it takes to figuratively, but also literally turn the switch to "grey" and look at what your little man has already achieved ????? Lots of strength......FIjne and good day to you !!!
Martine Voogd from Amersfoort
Tuesday, 04-12-12 08:20
darlings how brave you are, all three of you!!!
annoying that he is so restless, but how proud we are that his little voice sounds! we continue to stand around you in prayer. we pray God's breath of life and peace on you!
Gijs and Gretha Jochems from Amersfoort
Tuesday, 04-12-12 01:57
So proud of you guys!
So heartwarming to read how good God is and how you are experiencing all this.
What a Blessing to be part of this "family".
Wishing you much strength, but above all enjoying those beautiful moments! Keep praying for you guys.
Wishing you rich Blessing from our Heavenly Father.
Love, X
Inge
Monday, 03-12-12 23:49
You guys should know how much your updates are appreciated! Thank you very much again! Sleep well, God's Peace and Love for tonight.
Natanja
Monday, 03-12-12 23:40
How nice that Gideon is doing better, now that they are taking it easy on him! And not surprising that it affects and concerns you so much how Gideon is doing. As a mum and dad, there is nothing that affects you as much as your child's well-being! I hope you can enjoy all the beautiful moments with your son again tomorrow!
Natanja
Monday, 03-12-12 23:39
How nice that Gideon is doing better, now that they are taking it easy on him! And not surprising that it affects and concerns you so much how Gideon is doing. As a mum and dad, there is nothing that affects you as much as your child's well-being! I hope you can enjoy all the beautiful moments with your son again tomorrow!
Marijke from Leusden
Monday, 03-12-12 22:17
Darlings Gideon is a warrior you are warriors and lots of people are fighting with you in prayer and thought......Godmas good and very trustworthy......loves from me.......
Joni from Amersfoort
Monday, 03-12-12 22:04
Dear treasures,
We think of you, still very much, and oh how much the little man is already going through in his life. We wish him God's peace and quiet! May the morphine leave his body soon!!!!! Big hugs LY E&J
Paula Brewer
Monday, 03-12-12 17:50
Dear Marieke, Nathanaël and Gideon,
Think of you three daily, you are in my heart and I do not forget you in my prayers.
I really enjoy reading your updates every time. Sweet that you also take the time and courage to do so every time. Thank you so much!
Big hug
fam. Promm.
Monday, 03-12-12 16:28
We pray the little man and you all rest. Not strange with all that has happened! You are being well looked after.
G&S from Amersfoort
Monday, 03-12-12 15:43
Hi dears, definitely keep calm! If we can do anything for you guys, just let us know! We are just back in t land :-) So nice to read your posts though that all in all things are going well. Good luck with the winding down of the morphine and we love you guys!!! Big hugs from us
Gerard & Aleid from Woudenberg
Monday, 03-12-12 15:43
Dear all3, God is with you, every day every moment, even every second! You are in His hands, and Gideon is true warrior, and God is fighting with you. And in Him we are more than victors.
myriam elias
Monday, 03-12-12 13:12
dears, If we can do anything for you...give a shout!!!! we love you very much!xxxxx
Mum
Monday, 03-12-12 13:06
Darlings,
we are very close to you in everything, you know that.
We so want all moments to be prosperous.
He has already taken so many steps forward! We are so grateful with you for that. Now it seems to be a moment of pause.
This morning I listened to a speech by Corrie Ten Boom where she said, among other things:
'When the worry spirit knocks at the door, I ask the Lord Jesus to go to the door, and when He opens it's already gone!'
Big fat kiss,
Mum
Christa & Sjoerd from Leusden
Monday, 03-12-12 12:46
Well.....tis quite a lot for the little man too! We are very proud of him, and of you of course!
The discs aren't out yet....we are going strong and praying that you may come back this way soon!
Hugs!
Hanna Wolff
Monday, 03-12-12 12:35
We pray that the little man will grow stronger and stronger and that God will fill him with His peace
Many blessings for today and we are thinking of you!
Much love
Evert&Elza and Eliza van de Kamp from Scherpenzeel(GLD)
Monday, 03-12-12 12:05
dear toppers,
We pray you have a peaceful day.We hope Gideon may also find peace with you.
Sweet greetings from us
Inge
Monday, 03-12-12 11:41
Dear Marieke and Nathanael,
We are praying for you, for the doctors and nurses and all the dots you bring up. We love you guys.
Lots of love, big hug.