Gideon day 16 (long line out)
16.00u
No news is good news. In this case, then...
Gideon is making great strides again. Today he is on 65ml with feedings and so the need for additional feeding via drip is no longer necessary. That plus the fact that the morphine has now stopped completely means that he no longer needed his long line drip in his leg so they took it out this morning. Another line less and now completely drip-free.
By comparison. A fortnight ago, he had about 3 different IVs and about 10 other lines that were also needed. The only thing he is now attached to is the low flow (or nighttime CPAP), heart rate and breathing sensors, saturation monitoring on his foot, catheter and gavage. It's a lot easier to change and pick him up now. And it makes him much more of a "normal" baby.
And from today (if he pulls it off) he is also on the low flow all day because he did so well yesterday with the 2 x 6 hours. At night, he may still be put on CPAP if he needs it.
This afternoon we went to the beach for a while. That's the name of the ward above the NICU where he is now. If he continues to do so well and does not need the CPAP support at all he will go there. Another big step but also exciting (for us). It is a much quieter ward with more older children. And there are smaller rooms such as single rooms where there is also a bed for a parent, or a 4-person room. Big difference from now where about 15 babies can lie including beeping care and agitation.
But they are very happy with how things are going. The upward trend is above average. What we like to hear is that the caregivers (of Gideon) think it is special that he is so calm and remains cheerful (of course he does cry sometimes, but easy to comfort). Of course, they try to avoid negative stimuli as much as possible, but that is far from always successful with draining, IV in and out, taking blood, surgery, etc. They say that many babies are often a lot more restless themselves after 2 weeks of this restlessness and, for example, are also reluctant to put something in their mouths because there has been too many negative stimuli. Gideon doesn't actually seem to be bothered by anything, our boy. But we also see this as protection that God has given and is giving him, because we cannot influence it.
It is also remarkable that Marieke can keep up with Gideon's pace. He now gets 8 x 65ml a day. That's a lot of milk, but production is trouble-free. Now to work on delivery. (That is, that he can drink by himself)
And just to show what Gideon looks like when he is awake here's a little video.
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Messages 1 up to and including 22 out of a total of 22
Tineke Voorthuis from Amersfoort
Monday, 10-12-12 10:25
What a lovely little guy!!!
Wilfred and Christine
Sat, 08-12-12 12:11
What a beautiful little boy!!! And how nice that he is doing so well. Enjoy! We pray the three of you get to go home soon.
Tetsje
Sat, 08-12-12 11:39
What a cutie, a beautiful boy say! Great that things are going so well, breastfeeding is bound to work out too!
Love, Tetsje
Esther from Ede
Sat, 08-12-12 10:37
How incredibly super to read such good posts every day, enjoy!
charlotte from nijverdal
Sat, 08-12-12 03:09
owwww I totally melt at Gideon's clip!!!
What a cutie!!!
What beautiful eyes he has!!!
Tonja Danker from Zeewolde
friday, 07-12-12 22:49
What a beautiful little guy, great that you can enjoy him so much! God is good!
Myriam and Nick Elias from Amersfoort
friday, 07-12-12 22:30
Hi dears!!! So nice how things are going so far!!! And what a beautiful video an Gid!!! Truly a cutie!!! Love you!!! Xxxxx
Eunice
friday, 07-12-12 20:58
How incredibly cool!!!
What a lovely, quiet little fellow. Great eyes :-)
And respect that you pop that breastfeeding in anyway.
Super to see G ff, thanks! X
Elza&Evert and Eliza van de Kamp from Scherpenzeel(GLD)
friday, 07-12-12 20:10
Dear M&N and Gideon,
Wow!!!What good news all.We are so incredibly proud of your brave/strong little man.But above all thank God for this great news.Enjoy!!!We will keep praying for you.
love from us
Debby
friday, 07-12-12 20:07
Wouw what a beautiful little man, what a privilege that we got to see him for a little while now in this way. Wow aaww ooww aahh wow, Thank You Jesus and thank you guys!!!
Joni
friday, 07-12-12 19:52
GAAF GAAF GAAF!!!!!!!!!!!!!!!!!!
Marijke from Leusden
friday, 07-12-12 19:23
Ooooo I am so touched to be able to see Gideon like this in real life, what beautiful big eyes and the sweetest thing he does is put his little fingertip in his mouth.
How well Gideon is doing Halllelujah....thank You great God.......loves from me.
Leoniek
friday, 07-12-12 19:19
Hi proud parents!
How nice to see your beautiful little guy in the video! Really great! Great to read that things are going in the right direction.
Love,
Leoniek.
Inge
friday, 07-12-12 19:15
Ooooooohhhhh
Aaaaaaaaahhhhhh
Aaaaah, ooooohhhhh,
Aaaaaaahhhhh
alinde knepper from elburg
friday, 07-12-12 18:14
Wow!!! How good! And what a great little guy Gideon is! Beautiful eyes and so wise, it makes you melt, doesn't it????!!! Enjoy, enjoy and enjoy!!!! I'm so happy for you guys that things are going so well, hugs: Alinde
Gea Slijngard-Brauns from Hoogland
friday, 07-12-12 18:02
Thank you so much for Gideon's video: it is IMAGES....to make you quiet! Much love from all of us.
Philip from Bussum
friday, 07-12-12 17:09
What a wonderful and beautiful grandson! So grateful....
Rebecca van Boven
friday, 07-12-12 17:02
I'm so happy for you guys that things are going well:D And what an incredibly beautiful guy! Incredibly cool to be able to see that video!
Larissa Baak from Coevorden
friday, 07-12-12 16:53
Wow, how wonderful to read that things are going so well!
And great that video, what a beautiful little guy!
Enjoy, enjoy!
Mattanja from Harderwijk
friday, 07-12-12 16:32
What a beautiful little man and how wonderful to be able to watch this like this!
Erik and Linda Kelderhuis from Ridderkerk
friday, 07-12-12 16:22
What a good God we have!!!!!
What a beautiful little man you have, truly with tears in our eyes we watched the images.
How wise he is!!!!!!!!!!!!
How nice that he is making such great progress.
We continue to pray for you, that the three of you get to go home comfortably.
MIsperhaps sooner than we think!!!
Big hug from Ridderkerk
Gerard & Aleid from Woudenberg
friday, 07-12-12 16:15
We are soooo happy for you guys! We pray that Gideon will soon be able to admire his own little room in your home. Enjoy everything God is giving you through Gideon!