Gideon day 72
21.45u
What a day. Only now do we actually notice how tired we are. Pretty much wrecked. But also happy with how everything went today.
It took quite a while this morning before they actually started the operation. This was because the arterial line they wanted to put on Gideon did not go well. Gideon was difficult to prick. In the end, they punctured Gideon completely with the final result being 2 infusions (hand and foot) and a long line in the neck artery.
When the surgery was done, before Gideon was ready to be transported, we had a quick chat with the surgeons about how things were going. The operation itself went smoothly in the end. They found the liver stuck up quite a bit to the diaphragm. This could very well be the reason for Gideon's laborious progression recently. There was ultimately no hole in the diaphragm but part of it was too limp and had started to stretch. As a result, the diaphragm lacks some firmness to provide sufficient support when breathing. They expertly folded this flabby part and stitched it together so that this became a sturdy whole, sturdy enough that they again did not use a plastic patch. They were very pleased.
We put Gideon in a transport incubator as we did outward, also walking him back to the ICU where they had put him on a warming bed. This was quite a difficult moment. There he lay completely lifeless on the tube again with a lot of bells and whistles around it. At one point he started to wake up more because the anaesthetics had worn off and you could see that he was not comfortable. And because he was intubated, when he cried you only saw his face widen but heard nothing. That remains very difficult to see. Yet we saw that despite the intense operation, he looked strong.
By the evening, the doctors noticed that Gideon found the ventilation very annoying and very uncomfortable. Since he was actually breathing very well on his own on the Tube ventilation, they wanted to put him back on CPAP immediately. Wow, we didn't expect that fast. An hour later, he was lying contentedly on the CPAP. A lot calmer than on the Tube.
Now he cries very hoarsely. Actually more squeaking, but at least he can express and move a little more and he looks more like himself again. What a relief. It also seems that when breathing, he moves his chest more evenly and does not contract any more. He is now on morphine again for pain and no feeding for now. Tomorrow they will see if they can take new steps in this. Hopefully he will feel better soon.
We are very curious to see what tomorrow will bring.
16.10u
The operation was successful, Gideon is back in stable condition in the ICU.
It is frankly awful to see him like this again. On life support, uncomfortable and completely slack....
More later
12.50u
We were just called. The preparations (including catheter and long line insertion) did take a bit longer than expected and they are only now going to start the real operation.
Gideon is stable though thankfully.
And we hoped they would be ready by now... So just a little more patience....
12.40u
We are still waiting, we haven't heard anything...
10.00u
We just walked with Gideon to the OR. He stayed calm the whole way so we were able to leave him well behind. Now we are waiting for the signal to pick him up again.
6.45u
Well, we are ready. We are about to visit Gideon to be with him for a while and help with the final preparations for the operation.
Pretty tense, yet confident too!
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Messages 1 up to and including 55 out of a total of 55
Rosemareine Hubers-Gründemann from Austria
Saturday, 02-02-13 12:39
Braver, braver, even braver, bravest, bravest!!!
Full of confidence and aware of Leadership, you have been active recently. Congratulations! You have also climbed this mountain together with Gideon and God's guidance. How much you have undertaken and also made yourselves heard. Congratulations! Diagonally in the picture I now see your rainbow. All life force is hidden in it. Keep taking care of yourselves, because then you can also be there for your brave son. I hope all the bells and whistles will soon disappear after yesterday. That the warrior may start enjoying life together with his fantastic mum and dad. Many hills will follow but I hope and pray that it may remain just hills. Kind regards and much energy wished during the little moments of rest. rosemareine
Joke and Ton from Leende
Saturday, 02-02-13 12:36
Glad the surgery is behind us! And how wonderful that the cause for the breathing problems seems to have been found!
We wish you that the way up has finally begun.
Lots of love!
Ruben and Laura
Saturday, 02-02-13 10:39
Dear Nathanael and Marieke,
We sympathise and pray for you. How intense everything is, but great that the operation seems to have been successful. We hope and pray that things will pick up now.
Love, Ruben and Laura
Inge
Saturday, 02-02-13 08:03
Constantly with you with heart and prayer.
In communion with all who pray for you.
We love you guys! Very big hugs, XXX
Richard and Françoise
friday, 01-02-13 23:45
How intense! We hope you will have a good night's sleep! Good luck!
Love,
Richard and Françoise
Kees and Karin
friday, 01-02-13 22:48
Dear brave threesome, we hope you will sleep well and that rest will do a lot of good. Grateful for now, we look forward to more.... Love
Rolof and Conny
friday, 01-02-13 22:33
Dear nathanael and Marieke
What an exciting day, but how wonderful that the surgery went so well! We pray with you for a speedy recovery. The start is already fantastic ( already on the cPAP).
Love
Elza&Evert and Eliza
friday, 01-02-13 22:32
Dear cronies,
Wow how happy and grateful we are for you guys....
Another small step in the right direction already...
We pray over Gideon's complete healing and recovery from...
But also we pray for you...
Wishing the 3 of you a restful night....
Know that God is watching over you
Sweet hugs from the 3 of us
Michael & Esther
friday, 01-02-13 22:26
Wow, good to hear that the surgery went so well and that he is already back on CPAP! What a little fighter that Gideon and what a wonderful, caring, loyal Father he has!!!
Big hugs to you, Nathanael and Marieke!!! Have a nice rest now too. Terribly intensive and emotional day for you. But this endless day is really over now! Tomorrow another new tomorrow!!!!Sleep well! You are TOPPERS!
Love from us
Alinde Knepper from Elburg
friday, 01-02-13 22:25
What an exciting day you have had! And what an energy it takes too! Glad the operation went well! We are praying for you. For strength, patience, courage and rest and pray for a speedy recovery! Hugs
Marijke
friday, 01-02-13 21:51
Thank you for your messages,and the photos ofGideon the strong brave little man, with his loving parents......Thank you Lord so far....I pray you will have a good night and be there again tomorrow rested for Gideon. Much love......
H&M
friday, 01-02-13 21:48
Yes - yes - yes, these are good news. what a fighter. and super that he is already back on the cpap. that's fast.
We pray for the next few hours that he may recover prosperously.
Elza&Evert and Eliza
friday, 01-02-13 19:55
Dear chaps,,
We are praying for the 3 of you.
We pray that strength,tranquillity,peace may descend upon you
sweet hugs from the 3 of us
Liesbeth
friday, 01-02-13 19:42
Dear Marieke and Nathanael,
What a long, tiring day!!! Waiting, waiting and waiting.
Glad to read that the operation went well.
We pray with you that the recovery will be quick and prosperous!!! That your waiting will be answered. That the day of coming home together may be very near. That normal dad-and-mom life may begin. May Gideon admire his little room at home, may his things be used as planned. That he can grow up like any other boy!
That for you, being away from home is over and a new time is coming, where you can rest and so on.
Dear treasures you are jugglers!!!
Love from us
Tiny Heek from Bunschoten
friday, 01-02-13 18:47
Goosebumps. I pray and pray and pray and pray....
Anneke Smedes from Almere
friday, 01-02-13 18:07
That seems really awful to me too. Seeing your little guy helpless and dependent on doctors and equipment. How strong you guys are. Unbelievable. God is with you, day by day he carries you. We pray for little Gideon. For a super fast recovery!
Paula Brewer
friday, 01-02-13 17:29
Thank you for your message!
We continue to pray for you. strength!
xxx
marijke
friday, 01-02-13 17:14
good to read that the operation was successful.
What a brave little man,
i wish you as parents with both your families much strength and blessing comfort and encouragement from our great GOD.
Still with you in prayer and thought. much love.......
G&S from Amersfoort
friday, 01-02-13 16:54
Very happy that the surgery was successful dear folks! Now on to a very speedy and good recovery. In our prayers...
Jelle from Amersfoort
friday, 01-02-13 16:53
Strength! We are thinking of you!
Jelle from Amersfoort
friday, 01-02-13 16:53
Strength! We are thinking of you!
Kees and Karin
friday, 01-02-13 16:31
We continue to embrace this brave little man and you in our prayers.
Much love
Debby
friday, 01-02-13 16:22
Ow dear ones what another intense day for you and with things like this, waiting takes so long. You are in my thoughts and prayers. Lots of prayers of strength for today, happy hope for the future.... We keep looking up, and praying heaven down. Very big hugs,
Eunice
friday, 01-02-13 16:20
Big hug!
Joni
friday, 01-02-13 16:16
Strength!!!
Gertrude and Bente
friday, 01-02-13 16:15
We also continue to pray!!!
Gerard & Aleid
friday, 01-02-13 15:53
Praying we surround that little brave Gideon!!! Strength and patience to you guys! Xx
Gre Nagel from Bunschoten
friday, 01-02-13 15:43
Strength in this exciting time. Our thoughts and prayers are with you. Marinus and Gre.
Hanneke W.
friday, 01-02-13 14:57
Hope the surgery is almost over! Much strength for the days ahead and God's peace to the 3 of you!
Esther from H\ sum
friday, 01-02-13 14:37
We are thinking of you and prayed for you this morning in our prayer meeting.
The only way is up and we so hope it will be an upward trend for you from now on.
Love from the KCC.
Esther A from Amersfoort
friday, 01-02-13 14:11
Oh no say....da's really not fun! Waiting even longer until they are really ready! Lots of strength, I'll keep praying with you.
Richard and Françoise
friday, 01-02-13 14:06
How exciting for you guys! Lots of strength.
Love, Richard and Françoise
Eu
friday, 01-02-13 13:48
And even more patience... poor mummy and daddy! But good preparations are also worth a lot. Thankfully, they have started! I pray, pray and pray!
Elza&Evert and Eliza
friday, 01-02-13 13:48
Dear M&N and Gideon...
Waiting for...
Waiting for a sign from the doctors that the operation went well...and of course waiting for the moment when you can greet your brave little man again,and cuddle him.
We are waiting and praying with you....
sweet hugs from the 3 of us
Klaudia
friday, 01-02-13 13:33
we prayed for you again this morning, Dieneke, Ineke, Marianne, Ursula and I. And continue to do so constantly. Lots of strength, power and everything you need prayed for.
x
Kees and Karin
friday, 01-02-13 13:18
Tough, waiting even longer... We pray...
Jelmer and Paula from Amersfoort
friday, 01-02-13 13:13
We are praying with you... strength!
Paula and Jelmer
Monique Burger from Zoetermeer
friday, 01-02-13 13:04
Prayers for you and Gideon in Zoetermeer too.....
Matthieu
friday, 01-02-13 12:41
Exciting. We continue to pray
Tamara van de Groep
friday, 01-02-13 12:10
Dear Nathanael, Marieke and Gideon,
It was with you in mind that I got up this morning. Lots of strength this day and with you we fight for your warrior Gideon.
Much love,
Tamara
Kees and Karin from Amersfoort
friday, 01-02-13 11:36
Joined with you in our prayers! His nearness!!! Love.
Harry & Marcelle
friday, 01-02-13 11:22
We hope for you that this "restart" will finally bring you the happiness you have been looking forward to for so long: Taking Gideon to Amersfoort to your own familiar surroundings. In thoughts with you.
Marijke
friday, 01-02-13 11:20
Lots of strength in prayers and thoughts with you........ lots of love.....
Peter & Jennifer Dijkstra from Puttershoek
friday, 01-02-13 10:51
Dear Nathanael, Marieke & Gideon, we are praying for you! Matt 11:28-29
Michael & Esther
friday, 01-02-13 10:25
Strength dear Nathanael & Marieke! Connected in thoughts and prayers! Very big hugs from us!!!
Christa & Sjoerd from Leusden
friday, 01-02-13 10:01
We are praying for you!
Hug
joni
friday, 01-02-13 09:39
Dear treasures and tough, strong Gideon, Praying and thinking of you we stand behind you this day!!! hugs!!! Joon, Eliam &kids
Arno&Eunice
friday, 01-02-13 09:03
Suddenly I thought: whaaaa today is the day!
Much strength today and all peace/peace of God in your waiting room and operating theatre and wisdom for the doctors we pray. Love us
Dad and Mom
friday, 01-02-13 08:56
Dear ones, constantly in prayer and standing beside you. Give another big hug to Gideon from us, and to you too. xxx
Arianne
friday, 01-02-13 08:56
We are thinking of you and praying for you! Love!
Boukje Nienhuis from Dronten
friday, 01-02-13 08:46
Much strength and blessings for today!
Monique
friday, 01-02-13 07:53
Hey dear treasures,
We are thinking of you on this exciting day!
But we are going for full healing recovery!
Big hug!
h-m
friday, 01-02-13 07:32
we are with you in our thoughts and prayers !!!
h,s,b
friday, 01-02-13 07:08
Hi dear people, very strong today!!!
How debilitating all that waiting can be! If all goes well, all that waiting is almost over! Lots of strength with those last few leads of waiting!
We are praying with you!
Mattanja from Harderwijk
friday, 01-02-13 07:01
Dear people, you are in my thoughts and prayers. God is with you and Gideon! Very much peace and blessings to you!