Hospital day 3 - New day

EN 7.30pmThe day has gone way too fast. Familiar fact within the hospital. Everything races past you and suddenly [...]

Hospital day 2 - Operation day

EN EN 9pm Gideon has been very awake a few times and has also talked a bit. He was thirsty. [...]

Hospital day 1 - So it begins

The adventure has begun. Today from 11.00am had meetings with anaesthesia, clinical geneticist, blood sampling, consultation with paediatrician, preparation with teaching assistant, [...]

Bring it on

"I am so happy that I get to go to school this week before the doctor opens me up." Thursday morning at [...]

Operation Date and School!

Just another update, we received many messages again how things are going now. How incredibly special to notice that everyone [...]

Rest

Gideon is doing very well (under the circumstances). We notice that the extra food is really doing him good. He seems [...]

Duodenum probe

Pff what an adventure again... Just a report. It's TuesdayAt Nijmegen for a whole bunch of interviews and a [...]

Check

N 2 days off requested - check Preparing for a night in hospital with Gideon and little sleep - check M signed off from [...]

Survey results

The surgeon called us Dindsday evening, so we had some time to let it sink in.The lung lobe that [...]

Investigations behind

On Thursday morning, we were told to report to the paediatric ward at 10.30am. Soon we were taken to Gideon's room which we shared [...]

Unclear

Gideon developed a nasty cough with a lot of phlegm in early September and after two weeks it turned out to be pneumonia. [...]

CT scan result: To operate or not to operate?

The attending surgeon called us and briefly updated us on the situation. The result of the CT scan is positive, [...]

Hospital day - CT scan

Update: 1 August still no result A quick chronological account of our hospital day; 7.30amFrom home. We have an appointment for [...]

Good and bad news

Good news We had a wonderful time. Enjoyed 2 weeks of holidays. A week of Belgian Adrennen and a [...]

Six months later

It is now almost 7 months since Gideon had an operation due to an inflammation in his abdomen. The wound from this [...]

Good news!!!

The antibiotics have done their job, the inflammation seems to be gone! This means Gideon does not need major abdominal surgery. Wow, [...]

Gideon is 3 years old

Hip hip hurrah. 3 years! We had a really fun birthday. How wonderful it is to have Gideon [...]

Tissue test results

Spent another half-day in Nijmegen today to check the wound and get more information about the operation [...]

Surgery gone well

We had to report to Nijmegen today at quarter to 10. At quarter to 11, he was pre-medicated and we [...]

Friday surgery of hump on back

Tomorrow (Friday), Gideon will have surgery on the lump on his back after all. After the various examinations we had [...]

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