This is Gideon
Gideon's blog which we have been keeping since about the 20-week ultrasound. Gideon was born with an open diaphragm (Cognitive Hernia Diafragmatica) just like his big brother David, which is why we gave birth at Radboud Hospital in Nijmegen.
Gideon day 57 - scan results
11.50h After a few days of waiting, we finally know what's going on with Gideon, making him [...]
Gideon day 56
19.45h The CT scan went reasonably well. From 10h Gideon was not fed and from 12h diluted contrast medium [...]
Gideon day 55
20.40h Gideon was awake a lot today and had difficulty falling asleep. He had quite a few restless moments, but did [...]
Gideon day 54 - still no results....
We had a bit of a rocky day today...We were at Gideon's place at 8.30am this morning to take care of him so the [...]
Gideon day 53
20.45h Marieke and I slept wonderfully last night. There is no place like home. (But home is where the heart [...]
Gideon day 52
22.00h We are back in Amersfoort for a while. Last time we were home for a while, our [...]
Gideon day 51 - Bad news
Bad news. Apparently, the roller coaster is not at its end point yet. The bridge we are building to the top [...]
Gideon day 50!
14.10h First, a quick note to tell how we experienced our night at home: wonderful! We really got new energy from [...]
Gideon day 49
21.15h Gideon was on the low-flow all day today and it went well!1 dip when a [...]
Gideon day 48
18.15h Tomorrow or Thursday there will be a CT scan, because the doctors do not understand why Gideon is not without the [...]
Gideon day 46
18.30h We feel a bit 'stagnant'. Gideon is doing quite well on CPAP, but has [...]

Gideon day 45
16.45h Also today, Gideon is stable. He was allowed a little longer on the Low-Flow if he could manage it, namely from 11-15h, [...]

Gideon day 44
22.30h Things went a lot better with Gideon today, thankfully. What exactly it was yesterday we don't know, but [...]
Gideon day 42
8.15pm Yes! Gideon got to drink at the breast again tonight!!!!Before that, he had to go on the low-flow for a while, but that went [...]
Gideon day 41
9.30pm It is clear that Gideon is recovering quite a bit from whatever he has. He sleeps a lot and [...]
Gideon day 40 (pneumonia again?)
19.30h Gideon is stable in the ICU. That there is something in his left lung is certain, but what exactly it [...]
Gideon day 39 (back to ICU)
14.00h After a very good night without any problems, Gideon again had a lot of (we think) cramps this morning where he did not [...]
Gideon day 38
11.00h Things are going well here! Since we have been on this ward, time goes even faster. A day is [...]
Gideon day 36
19.15h Today and yesterday Gideon has been doing well. Apart from some cramps and re-sticking the [...]
Boxing Day (Gideon day 35)
12.00h Well, such good news yesterday and today another step back. Gideon had cramps from 3.30pm to 7.30pm yesterday [...]