This is Gideon
Gideon's blog which we have been keeping since about the 20-week ultrasound. Gideon was born with an open diaphragm (Cognitive Hernia Diafragmatica) just like his big brother David, which is why we gave birth at Radboud Hospital in Nijmegen.
Christmas Day (Gideon day 34)
11.15am Oops, completely forgot to write an update yesterday! And now it's already Christmas Day. Our rhythm is going [...]
Gideon day 32
12.00h Last night I slept with Gideon again and Nathanael went to the RMH again. Gideon spent last night before the [...]
Gideon 1 month old
12.00h Party, because Gideon turned 1 month old today. Every milestone is special, but especially as we don't [...]
Gideon day 30 (1st night with daddy)
23.30h So, this will be my first night with Gideon together. Just had a nice sit-down with him on my lap and under the [...]
Gideon 4 weeks! (no more luminal)
10.00am Gideon did so well last night! His levels stayed super and he only woke up three times [...]
Gideon day 28 (moving MediumCare)
Gideon is now permanently on the lowflow, faster than we had thought the day before yesterday therefore there was no reason to [...] him.
Gideon day 27
Gideon did very well last night without CPAP!!! Even now he is still on the lowflow and seems [...]

Gideon day 26 (full lowflow)
13.45h Today another 3 new steps after the doctors' visit. Next night, Gideon will be without CPAP for the first time, so [...]
Gideon day 25
11.30am This morning, we basically held Gideon all morning and had a nice frolic with him. How lovely that was. [...]

Gideon day 24
21.20h Quiet day today. What peace and quiet on the HighCare. In the ICU, they are more concerned with children "alive [...]
Gideon day 23 (bath and HC)
05.50h Last night, it took a while for Gideon to fall asleep nicely. We had him on the [...] again by 8pm.
Gideon day 22 (1st time at the breast)
2.20pm This morning, Gideon drank quite a bit (from what could be measured) for the first time at the breast. He was about [...]

Gideon day 21
05.30h Last night the internet was down so we couldn't write an update for a while, so I'll do it now while Marieke [...].
Gideon day 20 (kidney examination)
2.30pm Today, Gideon is still doing well. He is awake a lot though, but we like that! [...]
Gideon day 19
Fortunately, after Gideon did get another extra bit of luminal, he slept through almost the entire night and was [...]
Gideon day 18
13.30h Last night and today, Gideon is more restless again. They think this is (still!) the aftermath of the [...]
Gideon day 17
2.45pm Yes, today Gideon gets to go fully on the low-flow! Unless he doesn't pull it off, he may also be on it at night [...]
Gideon day 16 (long line out)
16.00h No news is good news. In this case, then... Gideon is making great strides again. Today he sits with nutrition [...]
Gideon 2 weeks old!
Today, Gideon is 2 weeks old. How proud we are of our brave warrior! He has already experienced so much [...]

Gideon day 14 (1st time wearing clothes)
14.15h Gideon is again enjoying himself today. He has already spent another 3 hours on the low flow and that goes [...]