Site and update
Unfortunately, no new site for a while yet. The hosting where I am is in the process of moving to a new software on which the old site does not run. But in the attempt to switch to the new software, some things of the new server don't quite work yet. And since that's taking a bit too long now, I'm back on the "old" server anyway. But the new site doesn't work on that one, so that's why I'm back to the old one for now. Unfortunately, but hopefully soon to the new one.
But high time for an update as well!
Gideon is doing SUPER GOOD!!!
He is now off nose and stomach tube and since a week the wound on his belly from the stomach tube is also closed. So we have no more medical stuff at all. No tubes to consider and no more wound care. Can he finally go down the slide with his belly, as he can enthusiastically tell himself 🙂 .
Eating is still a challenge and it takes a lot of effort and energy to get enough in every day. But we have had many moments of enjoyment in the meantime.
Gideon is doing really well.
Marieke has started studying speech therapy again. She has fallen quite a bit behind which she probably won't be able to catch up this year. So now we are going to see what possibilities there are to possibly take the points she has gained into next year so that she doesn't have to do everything over again. It's tough, but she loves to get back into it.
And strangely enough, now that things are going so well with Gideon and we have become more at peace, I have suddenly found out that there are apparently some things that perhaps I have unconsciously pushed into the background a bit over the past 5 years. On the one hand, it feels a bit contradictory, but on the other hand, it also gives me peace of mind. Unlike Marieke who doesn't have that at all, I process things in a different way, but there are perhaps some things I may work through a bit more. Emotions are not my strong suit and I may still learn a lot there 🙂 .
I haven't quite figured out how or what yet myself, but maybe I'll tell you more about it later.
For now, we are mostly enjoying the peace and quiet. A "normal" is not there yet, but it is better than ever in every way
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Messages 1 up to and including 2 out of a total of 2
Evert from Hong kong
Wed, 31-05-17 19:08
I would imagine that over the past five years, you have subconsciously decided that you, as a man, were not allowed to fail. That may have seemed like a good reason to put your feelings away for a while. Five years is a long time. If I were you, I would also take my time with what is happening now. Fortunately, things are going so well that you can make yard space for yourself. All the best.
Elly Vries from Almere
Sat, 27-05-17 08:02
How lovely to read that things are going so well with Gideon how happy you will be.
And it's very understandable that the past 5 years have not been easy on you, what you have had to go through as a family.
Thinking of you much strength wished
Grandmother of Stijn